{"id":116748,"date":"2025-03-10T10:11:40","date_gmt":"2025-03-10T03:11:40","guid":{"rendered":"https:\/\/legendstitch.com\/?p=116748"},"modified":"2025-03-10T10:11:40","modified_gmt":"2025-03-10T03:11:40","slug":"a-familys-journey-with-their-rare-and-beautiful-baby","status":"publish","type":"post","link":"https:\/\/legendstitch.com\/a-familys-journey-with-their-rare-and-beautiful-baby\/","title":{"rendered":"A Family\u2019s Journey with Their Rare and Beautiful Baby"},"content":{"rendered":"
Grace Ellis, 25, and Rhys James, 26, from Bridgend, Wales, welcomed their baby boy, Vinnie, in November 2024. But Vinnie\u2019s arrival came with unexpected challenges. Born with a rare condition called Goldenhar Syndrome, Vinnie has only one eye and an ear that is not in its usual place. This condition affects just one in every 3,000 to 5,000 births, with boys being the majority of cases.\n Goldenhar Syndrome is a congenital condition that can affect the development of the eyes, ears, and spine. For Vinnie, this means frequent trips between Wales and London for specialized medical care. Despite the challenges, Grace and Rhys are overwhelmed by the support they\u2019ve received from their community and beyond.\n The couple has been sharing their journey to raise awareness about Goldenhar Syndrome and to show the world that their little boy is just as perfect as any other child. \u201cVinnie is our miracle,\u201d Grace says. \u201cHe\u2019s strong, beautiful, and loved beyond measure.\u201d\n The family\u2019s story has touched many hearts, and they hope that by sharing their experience, they can help other families facing similar challenges. \u201cWe want people to see that differences don\u2019t define us,\u201d Rhys adds. \u201cVinnie is teaching us so much about love, resilience, and the beauty of being unique.\u201d\n As they continue their journey, Grace and Rhys remain grateful for the medical teams supporting Vinnie and the outpouring of love from friends, family, and strangers. Their message is clear: every child is a gift, and every life is worth celebrating.\n","protected":false},"excerpt":{"rendered":" Grace Ellis, 25, and Rhys James, 26, from Bridgend, Wales, welcomed their baby boy, Vinnie, in November 2024. But Vinnie\u2019s arrival came with unexpected challenges. Born with a rare condition called Goldenhar Syndrome, Vinnie has only one eye and an ear that is not in its usual place. This condition affects just one in every\n","protected":false},"author":11,"featured_media":116751,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[670],"tags":[],"class_list":{"0":"post-116748","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-news"},"jetpack_featured_media_url":"https:\/\/legendstitch.com\/wp-content\/uploads\/2025\/03\/Vinnie-has-only-one-eye.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/posts\/116748","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/comments?post=116748"}],"version-history":[{"count":1,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/posts\/116748\/revisions"}],"predecessor-version":[{"id":116752,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/posts\/116748\/revisions\/116752"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/media\/116751"}],"wp:attachment":[{"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/media?parent=116748"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/categories?post=116748"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/legendstitch.com\/wp-json\/wp\/v2\/tags?post=116748"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}